Old friends, new home
Lauren Wheeler Lauren Wheeler

Old friends, new home

Hello! This is just a brief note to explain why there are suddenly some blog posts here that predate the founding of Lost Coast Advocacy.

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Why Doctors Don’t Know (and what to do)
Lauren Wheeler Lauren Wheeler

Why Doctors Don’t Know (and what to do)

How can doctors miss a diagnosis for 7 years?

For this post, I thought I’d share a discussion I had with my partner this month about an ad we kept seeing on our Roku channel. (We’ve been watching Bones reruns. #notanad)
The advertisement features a woman discussing a possible patient experience with hidradenitis suppurativa (HS) and promotes an “awareness” website that is actually run by Novartis who makes a medication which may treat HS (see last paragraph for more info).
The woman in the ad says she had painful bumps under her arms that prevented her from wearing a seatbelt tolerably. She says that doctors didn’t know what these bumps were for 7 years.

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Baffling Billing
Lauren Wheeler Lauren Wheeler

Baffling Billing

My personal story of negotiating an expensive hospital bill over a Covid test.

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